Sources of Support



Learning you have ovarian cancer can change your life and the lives of those close to you. These changes can be hard to handle. It is normal for you, your family, and your friends to have many different and sometimes confusing feelings.
  Don't be shy about asking for help from those who've "been there, done that."  Or at least inquire about what kinds of help is available so you can call on it when you think you need it..... 

You may worry about caring for your family, keeping your job, or continuing daily activities. Concerns about treatments and managing side effects, hospital stays, and medical bills are also common. Doctors, nurses, and other members of your health care team can answer questions about treatment, working, and other activities. Meeting with a social worker, counselor, or member of the clergy can be helpful if you want to talk
about your feelings or concerns. Often, a social worker can suggest resources for financial aid, transportation, home care, or emotional support.

Support groups also can help. In these groups, patients or their family members meet with other patients or their families to share what they have learned about coping with the disease and the effects of treatment. Groups may offer support in person, over the telephone, or on the Internet. You may want to talk with a member of your health care team about finding a support group.


It is natural for you to be worried about the effects of ovarian cancer and its treatment on your sexuality. You may want to talk with your doctor about possible sexual side effects and whether these effects will be permanent. Whatever happens, it may be helpful for you and your partner to talk about your feelings and help one another find ways to share intimacy during and after treatment.




For tips on coping, you may want to read the NCI (National Cancer Institute) booklet:
                                                                                             Taking Time: Support for People With Cancer.

Contact NCI's Information Specialists at 1-800-4-CANCER
and on line at  <http://www.cancer.gov>
They can help you locate programs, services, and publications. They also will send you a list of organizations that offer services to women with cancer.
(There is considerable information on ovarian cancer on this website but initially it doesn't look like it as ovarian is not one of the listed cancer types.  
Go to the search box and type in ovarian cancer and then click on the search icon and you will find a list of possible ovarian cancer topics to choose from for information.)
 
NOCC (National Ovarian Cancer Coalition) has lots of programs and information
web site:
  www.ovarian.org.  Tel:  1-888-ovarian


Other places for support information include:
 
  
Simmons Cancer Institute, SIU Med Center, Springfield, IL
http://www.siumed.edu/cancer
Based in Springfield, IL they  have an informative newsletter, support options,
 and free yoga, Tia Chi and other exercise classes and they maintain a Just for You Salon with wigs, scarves, hats and other important paraphernalia

http://
www.siumed.edu/cancer/

Siteman Cancer Center at Washington University, St. Louis, MO.
http://www.siteman.wustl.edu/ovariancancer.aspx
This site provides information on clinical trials among other things.  If you are looking for a  second opinion they also have a full list of their physicians although you will then need to look up the individual separately to see a full biography.


Barnard Health and Cancer Information Center
This St. Louis based program from the Siteman Cancer Institute is a free program that tries to pair newly diagnosed patients with survivors who have faced the same cancer.
It has information on clinical trials also: 314-362-7982 or 866-775-0349 toll free

National Comprehensive Cancer Network
An alliance of 21 major cancer centers with expert panels that analyze research and recommend treatments - http://www.nccn.com/type-of-cancer/ovarian-cancer.html

Teal time
A local Springfield, Il support group of survivors that meets monthly for dinner at various local  restaurants, and  participates in local health fairs, relays and cancer support iniatives.
 
See the Meetings and Contacts page.

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